Idiopathic Hypersomnia Symptoms Over Time: Longitudinal Follow Up from the Hypersomnia Foundation Registry

A recent study by NAPS Investigators Drs. Trotti and Bilwise from Emory University, following 323 adults over ~2.5 years, found that symptoms of idiopathic hypersomnia remain largely stable. Difficulty waking, daytime sleepiness, brain fog, and memory problems persisted for most participants, and sleep patterns stayed consistent. Despite ongoing symptoms, most people didn’t change their medications.

Mood disorders were common, with a slight increase in anxiety diagnoses.

This research highlights the chronic, persistent nature of idiopathic hypersomnia and the need for ongoing management.